Physical Loss Resources
Descriptions of resources in the following categories are available on this
page. Click on a category to go there directly, or scroll down to read the descriptions in all the categories.
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@STJOHNS.EDU In the body of the message type: subscribe MOBILITY YourFirstName YourLastName
- Contact: Bob Mauro (mauror@sjuvm.bitnet), Bob Falvo (falvor@sjuvm.bitnet)
- Description:
- A forum for those with limited mobility of any kind, according to the list owners, designed to facilitate interaction among the mobility impaired.
- Wide-ranging discussion, from tips for making life easier to advice on dealing with insensitive co-workers to asking whether accepting limited access without complaining is "wimping out."
- Volume 5-10 msg/day; unmoderated.
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@STJOHNS.EDU In the body of the message type: subscribe DIS-SPRT YourFirstName YourLastName
- Contact: Bill McGarry (wtm@bunker.afd.olivetti.com)
- Description:
- For parents and everyone who is involved with children with disabilities.
- The list was just formed in August 1994; one posting requesting an exchange of information on "the joys and sorrows" of raising disabled children. Fully supported list which could take off with the arrival of more interested members.
- No traffic currently; unmoderated; archived.
- Type of Resource: Freenet
- Access:
- telnet leo.nmc.edu
- login: visitor
- Menu selections:
- Community Services
- Resources A-D
- Disability Assistance
- Description:
- A listing of services for the disabled and their families, with a special heading for the blind, located in and around Traverse City, Michigan.
- Includes family support information, along with listings for other services offering practical support for day to day living.
- Type of Resource: Freenet
- Access:
- telnet firefly.prairienet.org
- login: visitor
- Type go center
- Menu selections:
- Community Center
- Community Health
- Self-Help Center
- Listing of Disability Groups
- Description:
- A list of disability groups in and around Champaign County, Illinois, prepared by the staff of the Self-Help Center at Family Services.
- Over 20 groups are listed by county and include resources for those dealing with autism, blindness, cerebral palsy, deafness, head injury, Down Syndrome, and physical disability. The purposes of the groups, names, addresses, and phone numbers are provided.
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@SJUVM.STJOHNS.EDU In the body of the message type: sub AMPUTEE YourFirstName YourLastName
- Contact: Ian Gregson (igregson@wimsey.com)
- Description:
- For amputees and their families, friends, teachers.
- This list was opened in mid-October 1994. Subscribers include amputees, medical professionals, and researchers. Fall 1994 topics have included phantom pain, prosthetics, romantic relationships, sports, and famous amputees.
- Volume: 25-40 msg/week; moderated; archived.
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@STJOHNS.EDU In the body of the message type: subscribe BLINDFAM YourFirstName YourLastName
- Contact: Roger Myers (myers@ab.wvnet.edu)
- Description:
- For all family members including spouses, parents, and children of a blind individual as well as any blind person.
- Discussions of all aspects of family life as they are affected by the blindness of one or more family members. Fall 1994 topics include books and tapes for the blind, blind family members trying to hide their blindness from the general public, and tips for housekeeping. Archives since August 1994.
- Volume 3-5 msg/day; unmoderated; archived.
- See Also DEAFBLND
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@SIUCVMB.BITNET In the body of the message type: subscribe DEAF-L YourFirstName YourLastName
- Description:
- For those with hearing loss, family and friends, and people who work with the hearing-impaired.
- Discussion of Deaf culture, various communication methods, medical procedures to increase hearing ability. The new Miss America as a role model was a hot topic in Fall 1994. While generally welcoming, exchanges can grow heated at times, and there does not seem to be an official list leader who actively works to calm things down.
- Volume 30-50 msg/day; unmoderated; archived.
- Type of Resource: Usenet Newsgroup
- Description:
- An alternate means of posting to and reading the DEAF-L listserv.
- Visit this resource: bit.listserv.deaf-l
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@UKCC.UKY.EDU In the body of the message type: subscribe DEAFBLND YourFirstName YourLastName
- Contact: Bob Moore (str00@ukcc.uky.edu)
- Description:
- For persons interested in Dual Sensory Impairment (Deaf-Blindness).
- Participants include professionals, family, friends and caregivers, and several individuals with varying degrees of DSI. List traffic goes in spurts; postings tend more toward information than conversation, i.e. newsletters, reports from camps and conferences, research announcements and requests. Requests for personal advice or feedback do recieve supportive responses, however. Occasional job announcements.
- Volume 20-40 msg/month (erratic); unmoderated; archived.
- See Also BLINDFAM
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@SJUVM.STJOHNS.EDU In the body of the message type: subscribe MY-FACE YourFirstName YourLastName
- Contact: Tom Holloway (xuegx@csv.warwick.ac.edu)
- Description:
- For people with facial disfigurements.
- The purpose of the list is to provide both medical and social information, and to confront emotional issues of living with facial disfigurement. Fully supported list which could take off with the arrival of more interested members.
- Not yet active; unmoderated; archived.
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank
subject line to LISTSERV@WUVMD.WUSTL.EDU In the body of the message type:
subscribe TRNSPLNT
- Contact: Dan Flasar (FLASAR@WUGCRC.WUSTL.EDU)
- Description:
- For "organ transplant recipients and anyone else interested
in the issues, experiences and realities of living with an
organ transplant." Listmembers include people who have had
transplants, those waiting for transplants, medical
professionals, family members, and friends.
- Discussion of necessary changes in lifestyle and attitudes
after a transplant, sharing of experiences, and discussion
of organ donor ethics and issues. Occasionally heated and
opinionated, but no flaming.
- Volume 30-50 msg/day; unmoderated; monthly archives
dating back to June 1993.
- Type of Resource: Usenet Newsgroup
- Description:
- An alternate means of posting to and reading the
TRNSPLNT listserv.
- Visit this resource: bit.listserv.transplant
- Type of Resource: World Wide Web page
- URL:
http://www.med.umich.edu/trans/transweb/support_index.html
- Originating Body: University of Michigan Medical Center
- Contact: Jim Dean (transplant.webmaster@umich.edu)
- Description:
- For transplant patients and their families.
- Part of the TransWeb organ transplant and donation page
from the University of Michigan, this page contains
links to sites maintained by national and local transplant
and donation groups, as well as links to other emotional
support resources on the Internet. All text.
- Visit this resource:
Support,
Advocacy, and Educational Groups & Resources
- Type of Resource: Discussion Group
- Access: To subscribe, send an e-mail message with a blank subject line to LISTSERV@STJOHNS.EDU In the body of the message type: subscribe TBI-SPRT YourFirstName YourLastName
- Contact: Len Burns (lburns@sasquatch.com)
- Description:
- For survivors, supporters, and professionals concerned with traumatic brain injury and other neurological impairments.
- Wonderful archives of articles, resources lists, and help guides for listserv users. Threads have included help in dealing with medical bureaucracy and coping with symptoms such as chronic pain and dizziness. The participants are generally very supportive; one brief flame war in a month of subscribing.
- Volume 5-10 msg/week; unmoderated; archived.
- Archives also available at URL: http://ns.sasquatch.com/tbi/
- Visit this resource's archives: TBI-SPRT Archives
- Type of Resource: Usenet Newsgroup
- Description:
- An alternate means of posting to and reading the TBI-SPRT listserv
- Visit this resource: bit.listserv.tbi-support
- Type of Resource: World Wide Web Page
- URL: http://www.sasquatch.com/cgi-bin/searchpage
- Contact: Dena K. Taylor (denataylor@delphi.com)
- Description:
- This page from The Perspectives Network provides a searchable database with listings of local traumatic brain injury support groups in the US and Canada. As of June 1995, listings for 27 states were included. The database is searchable by city and state. Listings include city, state, group name, audience, contact people and telephone numbers.
- Visit this resource: TPN Searchable Support Groups Database
Return to main page
support-guide@umich.edu
General Disability Resources