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Medical Library Association Encyclopedic Guide to Searching and Finding Health Information on the Web

edited by P. F. Anderson and Nancy J. Allee


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Free Samples: Preface

Health Information on the Web | Challenges | Guide Organization | About Volume 1 | About Volumes 2 and 3 | The Arrangement of Volumes 2 and 3 | Methodology | A Word about the Authors | Become an Expert Searcher

The number of Internet users has reached an all-time high -- and grows larger every year. Both the number of searchers seeking health care information and the amount of information on the Web constantly increase. Consumers search for different types of health information in different ways. Studies show that women are more likely to search for information about their children's health and are more likely to worry about the reliability of information. Men are more likely to use the health information from the Web to ask follow-up questions of their physicians, to bookmark Web sites, and to search for sensitive health information. Teenagers search the Web for health information on topics such as weight issues, mental health, drugs and alcohol, and violence. Librarians and other professionals who assist and direct searchers of health information on the Web are often asked to tackle the sometimes painful, often personal, and always very important questions of their clients. Just as all patrons want to find the best information available on the Web as quickly as possible, all librarians want to find the best answers for their clients.

Health Information on the Web

Librarians pay a great deal of attention to evaluating the quality of the health information available on the Web and identifying strategies for effective retrieval. Concurrently, lay people with health information needs have to sift through commercial Web sites as they seek trusted, reliable, unbiased information in answer to their health questions.

Before beginning a search, librarians and other professional researchers helping consumers have often had to decide how to search for health information on the Web. They could choose the undemanding searching of commercial sites, usually providing sufficient overviews and adequate results to general questions, but leaving the nagging sense that valuable information was overlooked. They might also choose the skilled, but more daunting, prospect of an individually designed search for specific information. The second search promises a superior exploration -- but may seem fraught with risk. The Medical Library Association Encyclopedic Guide to Searching and Finding Health Information on the Web has been designed to help all individual consumers searching for personal information get the best possible answers available. It has also been created to help librarians -- and all health information researchers on the Web -- do an efficient, comprehensive job of an increasingly overwhelming task.

Challenges

The main challenges to searching and finding health information on the Web are (1) knowing where to look and how to find the information and then (2) coping with the sheer volume of information that is available. The MLA Encyclopedic Guide is designed to tackle the undertaking in two basic ways. First, it teaches how to skillfully and thoughtfully search any health question in its entirety. Second, it provides an unparalleled reference tool of over 720 effective searches and strategies devised and tested by librarian­searching professionals, health care experts or practitioners, computer experts with health expertise, patient experts and advocates. Search topics cover 77 individual subjects in four broad subject areas, each a separate section of the Guide:

Guide Organization

These two purposes -- learning how to search and providing a reference tool of actual searches -- are mirrored in the organization of The Medical Library Association Encyclopedic Guide to Searching and Finding Health Information on the Web.

About Volume 1
Volume 1 is titled Search Strategies/Quick Reference Guide, and the first part of the volume is dedicated to explaining the essential background of effective searching of health information on the Internet. "Search Strategies" covers every aspect in theory and in practice. It begins with "Health Information on the Web: What's Good and What's Good for You," exploring the history, overview of current trends, and unique challenges of Web searching. Then it moves on to examine how to evaluate Internet health information and issues in using it, including criteria, confidentiality, standards, Web site accessibility, and many others.

Next "Search Strategies" progresses into a critical discussion of strategies and strategic searching that includes general tips, question types, and putting the pieces together. In particular:

This portion of the Guide contains general sources, tools, statistics, and standards. The "frequently asked questions" portion of this section gives ideas on how to find information on general health concerns -- drug information, laboratory results, medical procedures, terminology, and more. The final section of volume 1, "The Quick Reference Guide," includes seven handy and useful guides to finding health information on the Web. Three of them are likely to be used most frequently:

About Volumes 2 and 3
Volume 2, Diseases and Disorders/Mental Health and Mental Disorders, examines specific diseases, illnesses, and conditions. The first half, "Diseases and Disorders," ranges from AIDS to arthritis, cancer to chronic fatigue syndrome, skin diseases to stroke and cerebrovascular diseases. It includes nearly 300 specific topics in 32 major areas. It features the top-reported causes of death and disability for all major populations in the United States, both by age group and ethnicity, as reported by the U.S. Census. To help address searching for those less common illnesses, it also includes a section on searching for information about rare diseases. The second half, "Mental Health and Mental Disorders," looks at more than 150 specific topics in 23 major areas. They cover key approaches to the topic, including causes, comordibity, prevention, and risks; diagnosis; management, prognosis, recovery; therapies, therapists, and survival. Specific diseases range from addictions to anxiety, dementia to depression and eating and learning disorders, schizophrenia to suicide -- and many other vital conditions.

Volume 3, Health and Wellness/Life Stages and Reproduction, shows how to use the strategic approach in a comprehensive series of real-life health situations. "Health and Wellness" includes more than 160 specific entries grouped under 11 general areas. The major groupings include wellness and lifestyle; safety; first aid; traffic accidents; multicultural health; alternative/complementary health sources; issues faced by the lesbian, gay, bisexual, and transgendered community; living with a chronic illness, living with a disability; pain and pain management; and hospice and end-of-life care. The second half of volume 2, "Life Stages and Reproduction," covers 114 specific entries grouped under 11 general areas. "Life Stages" examines newborns, children, adolescents, men, women, and seniors. "Reproduction" topics include birth defects, genetic diseases, pregnancy problems, prostate disorders, and sexual health issues.

Volume 3 also has the cumulative index for the entire MLA Encyclopedic Guide. The index will be particularly helpful when you are looking for a specific term and will direct you to the best places to begin your search. The page you are directed to will feature cross-references to more ideas or terms in other sections of the Guide. You will see that there are extensive "see references" to other pertinent material at the beginning of each separate entry.

Note: The Medical Library Encyclopedic Association Guide to Searching and Finding Health Information on the Web also features a companion Web site. An optional CD-ROM is also available.

The Arrangement of Volumes 2 and 3
Volumes 2 and 3, divided into more than 75 parts, cover a wide range of subjects from different perspectives, all with basically the same structure. Each part fully explores a given subject and features complete search strategies, actual searches of various discrete subtopics, and other important and helpful information.

The search strategies include the following subdivisions:

More than 600 "Procedures and Special Topics" sections feature recommended search terms and important sites. The recommended terms comprise a wide, authoritative vocabulary of medical terms and expressions producing comprehensive search results. "Important sites" are the dependable, respected sites that a researcher could consult directly or employ as part of an individualized search strategy.

The following list terms or important, helpful sites:

Methodology

The universe of health information needs is virtually infinite. To place realistic limitations, we employed the following methodology. We reviewed four primary sources to determine a topic's eligibility for inclusion in this section. Any topic that appeared in any of these sources at that time was included in the book, even if it is not widespread:

This last category incorporated reported questions from healthfinder, HealthWeb, MedlinePlus, NetWellness, NOAH, and the United States Department of Health and Human Services. Using this methodology virtually ensured that all of the topics represented are common health issues and concerns.

Although we certainly tried to offer a broad range of subjects, The MLA Encyclopedic Guide could not be a comprehensive encyclopedia of every piece of health information on the Web. The first volume is a guide to searching, and the actual strategies and searches in the latter two volumes can be adapted to any health question. Also, although the diseases and special topics are common health issues and concerns, there is a section of searching rare diseases with samples that can be used to find information on any type of condition that is less common in the population as a whole.

A Word about the Authors

Many people contributed to this reference source. In addition to the two main authors, more than 20 individual authors researched and created the individual sections. Most authors are librarians, but some authors are health care experts or practitioners, computer experts with health expertise, patient experts and advocates, or people with a blend of these skills. The range of authors was selected to embrace and illustrate the range of concepts and strategies available and to give a place for those different voices. Searching is an effort in which diversity truly brings strength, and many voices and many ideas are often better able to find a way to an answer.

Become an Expert Searcher

Whether you use The Medical Library Association Encyclopedic Guide to Searching and Finding Health Information on the Web as a librarian helping a patron research a topic or as an individual doing private research, we trust you will find the information arranged in a user-friendly, yet professional, manner. We aimed to provide the best of both worlds. The guide is designed to be an authoritative research tool as well as the intuitive searching strategy of a skilled professional. Doctors, nurses, health care professionals, and librarians (e.g., medical, public, academic, special) will find this work useful in a variety of ways. They may find it helpful in enhancing and enriching their own searching skills, but first and foremost we hope that they will find this a helpful reference in their dialogues with patients and patrons.

The Medical Library Association Encyclopedic Guide to Searching and Finding Health Information on the Web is dedicated to the idea that there is a wealth of helpful and life-saving health information available on the Internet -- if you know the best way to find it. Too often seekers of this information -- whether individual researchers or trained librarians -- have only had the choice of consulting prepackaged information or searching without pointers from trained professionals in the field. Our guide has attempted to provide a comprehensive and cutting-edge assortment of information along with the best overall strategies to search. It is designed to bring together the best of health care information and the best of the Internet and -- importantly -- the best research methods. Health concerns demand nothing less.


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Last Update: Thursday, 01-Apr-2004 15:13:12 EST