ADVOCACY AND SUPPORT ORGANIZATIONS
| Children's Defense Fund | A non-profit organization devoted to children's issues, including the Children's Health Insurance Program (CHIP). The web site provides information on these topics. |
| Crash Survivor Network | A non-profit group based in Flint Michigan for survivors of an automobile crash. Established in 2006, it has quarterly newsletters and online information. |
| Invisible Disabilities Advocate | This web site is designed to assist family and friends of affected individuals in understanding disabling illness and injury. Invisible Disabilities Advocate (IDA) provides helpful links to sites and organizations, and a support board for sufferers and their loved ones. |
| Families USA | A non-profit organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. The web site contains state and national resources. Telephone: (202) 628-3030 |
| Family Voices | A national organization that provides information and education concerning the health care of children with special health needs. |
| Health Insurance Resource Center | A resource for families, individuals and the self-employed, this web site provides the tools to become a better-informed health insurance consumer. It is also possible to obtain quotes from reputable, financially stable insurance companies. |
| The Medicine Program | Volunteers who are dedicated to assisting the growing number of patients who cannot afford their prescription medication established this organization. Their function is to help patients who may qualify to enroll in one or more of the many patient assistance programs that provide prescription medication free-of-charge to individuals in need. |
| National Family Caregivers Association (NCFA) | A grass roots organization created to educate, support, empower and speak up for millions of Americans who care for chronically ill, aged, or disabled loved ones. Telephone: (800) 896-3650 |
| National Long-term Care Ombudsman Center | A Long Term Care Ombudsman is an advocate for residents of nursing homes, board and care homes, and assisted living facilities. Ombudsmen provide information about how to find a facility and what to do to get quality care. |
| National Organization for Rare Disorders (NORD) | This is a non-profit organization that provides information, programs and services for thousands of rare medical conditions, including primary immune deficiencies. Telephone: (800) 999-NORD |
| NeedyMeds | A non-profit Pennsylvania corporation that is a source of information on patient assistance programs and other programs that help people obtain health supplies and equipment. |
| Office of Children's Ombudsman | The office investigates complaints and concerns about children services by DHS or other child placement agencies. |
| Patient Advocate Foundation | A national non-profit organization that serves as an active liaison between the patient and their insurer, employer, and/or creditors to resolve insurance, job discrimination and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys. Telephone: (800) 532-5274 |
| Mother's Against Drunk Driving (MADD) | A national non-profit organization with the goal of eliminating drunk driving. |
| Prevent Blindness America | A national non-profit organization with the goal of preventing blindness. |
| Caring from a Distance | a nonprofit organization based in Washington, DC that works to bring together the shared experiences of people who have personally struggled with the stress, anguish and frustration of long distance caregiving; help caregivers to determine their needs and tasks; connect them connect directly with local service providers, educate them where to go for help; and facilitate communication between caregiving families, friends and service providers. |
Still under construction. Last updated12/29/06