DIAGNOSISOn December 26, 2001 Simon was diagnosed with a severe form of cancer that would be fatal within a few months if it were left untreated.
What seemed to be an ailment with fairly mild symptoms (a limp and a stiff neck) and with no traumatic moment to relate back to turns out to be a stage 4, high-risk neuroblastoma. The primary tumor is on his left adrenal gland. Secondary sites are on his spine, on the bottom of his lung, his pelvic bones, and his bone marrow.
Following the recommendation of the pediatric oncologists at the Univ. of Michigan Hospitals we decided to go ahead with the most aggressive treatment that is currently available. The therapy plan includes chemotherapy, a bone marrow transplant, and radiation. Simon had a "central line" (a type of permanent IV) put in on December 28, 2001 and started chemotherapy the next day.