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MESSAGE BOARD Archive August 1-16, 2004Thank you for visiting! You can click here to add to Simon's Message Board.
Monday, August 16, 2004 -- 17:06:34 (EDT) Name: Daune Mahy -- Email: daune.mahy@oberlin.edu Location: Oberlin, OH USA I was shocked to hear of Simon's death last week. I was away to Italy and then to Washington,DC, and finally California. Rebecca told me when I returned. I had no idea he was so critical! My thoughts and prayers are with you in your terrible loss. What a wonderful and dear spirit he was! Thanks for all of the stories and information on the web site. I send you all my love and embraces as you find your footing without your dear son. I had dinner with the Colemans and your dad last night, and heard more stories from him. It was a good connection for all of us. I won't be able to come to the memorial service but I will be there in spirit and I will try to call you this week so I can make at least verabl contact with you. Much, much love, Daune Monday, August 16, 2004 -- 13:49:23 (EDT) Name: Jean Irwin -- Email: jirwin@utah.gov Location: Salt Lake City, UT U.S. Know that I'm thinking of you all, Mary, Markus and Miriam each day. Through your loss, you and Simon have given many so much. What a tribute to Simon's life. Many hugs. Jean Monday, August 16, 2004 -- 13:19:26 (EDT) Name: Timothy Holley -- Email: tholley@wpo.nccu.edu Location: Durham, NC USA My aunt Jessie Reeder (Mary's former teacher, presumably voice, choir or Music Ed. in Oberlin) referred me to this website for Simon. Please accept my deepest sympathies and condolences on hearing of Simon's passing ten days ago. My years in A2 are often a maize and blue "blur", separated by some occasional memories amid the push to finish the degree (or else!!). I do remember you, Mary; my wife Dorinda and daughters Kelsey and Amanda are well. The girls are eleven and nine now, and Dorinda recently completed her first year of teaching after eleven years of being an at-home mom (what a shock!!). I teach at North Carolina Central University (Asst. Prof. of Music with varied liberal arts extras), and occasionally work with the NC Symphony Orchestra. I'm sure you know by now that Jessie's son Terry died of leukemia in '98, so reading the surgery diary brought back quite a few memories of visits from A2 to Detroit to see him. You and your family will be in my thoughts often as you celebrate the joy and deepened meaning of Simon's life. Continued comfort, strength and best wishes to you and Markus. Tim Holley Monday, August 16, 2004 -- 10:42:59 (EDT) Name: Julia Welch -- Email: jawelch@uh.edu Location: Houston, TX USA All of us at Michigan were sending you lots of love and prayers at the Academy meetings. Your family has touched our hearts in so many ways. We are in awe of your strength and tenderness and spirit. We will forever remember sweet Simon. Much love, Julia Sunday, August 15, 2004 -- 21:39:34 (EDT) Name: Keri Anderson -- Email: Keria23@hotmail.com Location: SLC, UT Thank you for keeping us posted about your progress with Simon's memorial service. I am looking forward to it as a celebration of life, love, and family. What a triumphant spirit Simon showed us all! It is hard to know what to say - everything you have written has been so inspiring and yet tender, and so deeply heart-wrenching. Life must just seem surreal for your family right now. I am greatful that you are taking your time together as a family and giving yourselves space as you need it. Please know that we are thinking of you. Ashley says "hello" to Miriam. Sunday, August 15, 2004 -- 20:37:34 (EDT) Name: Kris Hopkins Location: Clinton, NY I hope you will find, as I did after losing my mom to cancer several years ago, that memories that may initially bring tears and an almost unbearable ache in your hearts will eventually, with the passage of time, bring smiles and even soul-cleansing laughter down the road. Because it's those memories that ensure that our loved ones really are always with us, even when we no longer inhabit the same world. Miriam, I especially liked your way of thinking about Simon saying "hello" -- the recent meteor showers must have been absolutely chock full of "hellos" from him! We will think of him now every time we see a "shooting star." Thank you for that wonderful and comforting thought. And actually it's got me wondering: do you suppose the twinkling stars are Simon and his new angle friends winking at us?? I'd like to think so! Thinking of you all, Kris, et al. Sunday, August 15, 2004 -- 15:20:12 (EDT) Name: Becky Smith -- Email: beckysmith62@aol.com Location: Smithfield, NC USA Mary, I so appreciated your response on the Neuroblastoma Listserv to Shannen, who was struggling with missing her little Cierra. Your words to her were so perfect and loving and wise and I sat in awe at your wisdom and ability to express exactly what needed to be said. Thanks for sharing your words and heart with all of us those who stop by Simon's Place. We will continue to come by and check on you and your family and be grateful that our paths have crossed on this journey called cancer. Many blessings to you all. Saturday, August 14, 2004 -- 21:20:17 (EDT) Name: Kay Beaton -- Email: kaybeaton@csi.com Location: Park City, UT They awaken us to understanding with the passing whisper of their wisdom... They make our world more beautiful, ...Leave footprints in our hearts, and we are never, ever the same." Simon has obviously left lots of footprints on lots of hearts around the world. I am glad to have been one of those....Love, Kay Saturday, August 14, 2004 -- 08:21:58 (EDT) Name: Jacqui Shambaugh -- Email: jacquelyn.shambaugh@watsonwyatt.com Location: Oakton, VA Like many here, I'm sure, in the days since Simon's passing, I've shed lots of tears while reading your postings and friends' messages, and I've wondered how I might be able to help from so far away. These musings led me to the Alex's Lemonade site, where I found a simple way to provide some ongoing support to pediatric cancer: by buying Alex's Afternoon Blend coffee from independentroasters.com. With my order I told them about Simon’s passing and received a very nice note in return from Alex's Uncle Aaron, offering his sympathies. So long Starbucks! I’m hoping to turn Alex’s blend into a best seller in the metro-DC area! You’ve done so much good by sharing your family's experiences and struggles. Simon's story will continue to help others - through his strength, courage and incredible spirit, and by raising awareness that will someday lead to a cure. I'd hoped to come to the memorial, but can’t make it happen. So I look forward instead to making a commitment to Simon's fund, once organized. I have thought many times what Marta said in her recent post – that you were the best possible parents for Simon. To take it a step further, I think that only amazing people like yourselves could have created someone as extraordinary as your little boy. Jacqui Friday, August 13, 2004 -- 20:28:41 (EDT) Name: Ilene Andersen -- Email: ileneut@yahoo.com I am a first grade teacher at Uintah. Simon was a student in the room next to me. I'll always fondly remember having Simon during our first grade singing time. His face literally lite up when we were singing "Don't Cross the Street in the Middle of the Block" by They Might Be Giants. I adored watching Simon last year and was so impressed by his enthusiasm and sweet spirit. May the Lord be with you and give you the blessings you need to support you in this very challenging time. I truly believe you will see him again some day in the eternities. Love, Mrs. Andersen, room 110 Friday, August 13, 2004 -- 17:29:19 (EDT) Name: Chanda Courtney -- Email: courtneychanda@yahoo.com Location: Charlotte, NC USA Friday, August 13, 2004 -- 11:53:40 (EDT) Name: Melanie Erwin -- Email: bikeracemom@hotmail.com Location: SLC, UT United States I don't know if you will remember me but I called you last year asking about Simon. Our children went to Uintah together. I have a 7 year old little girl her name is Bailie Erwin who in February will be 5 years out from her second Bone Marrow Transplant. She was diagnosed in June of '99 with Neuroblastoma stage 4. Your family is so strong!! When we heard that Simon had passed our family took a moment, said a prayer and have devoted the next couple of weeks to making sure that our family and friends remember how many little angels surround us everyday. You are forever in our hearts and prayers. Simon will be greatly missed. Lots of Love, Melanie, Bailie and Marcus Erwin Friday, August 13, 2004 -- 11:53:23 (EDT) Name: Melanie Erwin -- Email: bikeracemom@hotmail.com Location: SLC, UT United States I don't know if you will remember me but I called you last year asking about Simon. Our children went to Uintah together. I have a 7 year old little girl her name is Bailie Erwin who in February will be 5 years out from her second Bone Marrow Transplant. She was diagnosed in June of '99 with Neuroblastoma stage 4. Your family is so strong!! When we heard that Simon had passed our family took a moment, said a prayer and have devoted the next couple of weeks to making sure that our family and friends remember how many little angels surround us everyday. You are forever in our hearts and prayers. Simon will be greatly missed. Lots of Love, Melanie, Bailie and Marcus Erwin Friday, August 13, 2004 -- 00:51:26 (EDT) Name: a friend -- Email: - Location: ann arbor, mi usa love and peace. Thursday, August 12, 2004 -- 18:42:42 (EDT) Name: Marta -- Email: manildi@millercanfield.com Location: Ann Arbor, In an e-mail exchange about Simon with our mutual friend Michael Cohen, Michael said of Mary and Markus: "They really were the best possible parents for Simon." Thursday, August 12, 2004 -- 16:16:07 (EDT) Name: Annemarie Toebosch -- Email: toebosch@speakeasy.net Location: Ann Arbor, MI USA Dear Mary, Markus, and Miriam, I wish you all the love, hugs, warmth, time with friends and family, memories and strength to make it through this hard time. Love, Annemarie Toebosch Thursday, August 12, 2004 -- 12:42:45 (EDT) Name: Nancy Kelly -- Email: nankel@umich.edu Location: Ann Arbor, MI USA My heart weeps for your loss ~ the most unimaginable kind of loss in the world. I am so glad that you could all spend so much time together, throughout the whole process, and most especially during the past months. I am eternally grateful that you have the heart to share your story. You are blessed to have so many who have taken care of you in so many ways. I especially love Miriam’s comment about the shooting star – Simon’s spirit does live with all of us, and if we look closely, we will see him in the wonders of daily life. Blessings and hugs, Nancy Kelly (U of M) Wednesday, August 11, 2004 -- 22:36:21 (EDT) Name: Gail and Gordon Lange -- Email: glpiano@sympatico.ca Location: Guelph, ON Canada Wednesday, August 11, 2004 -- 22:27:46 (EDT) Name: Gail and Gordon Lange -- Email: glpiano@sympatico.ca Location: Guelph, Ontario Canada Gordon and I offer our deepest condolences to you and to little Miriam at this very sad time. To lose a son, a child so young, must be just the most heart-breaking event to ever happen to parents. We have followed the story of Simon over the past years from Julie. Happily, she and Margot and Nathan were able to have a visit before the end. Wednesday, August 11, 2004 -- 22:00:15 (EDT) Name: Ann Tenbrunsel and Family -- Email: atenbrun@nd.edu Location: Chicago, IL USA I cannot tell you how sad I was to hear about Simon. You have been an amazing source of strength to so many people, including our family. Through sharing your journey of Simon, you have given all of us a symbol of faith, courage, and love. Thank you. May God bless you at this time with happy memories and loving friends and family. You are deep in our hearts and prayers... With love, Ann, Dante, Dante Joseph, Lina and Michel Wednesday, August 11, 2004 -- 21:10:54 (EDT) Name: courtney loveman -- Email: cloveman@umich.edu Location: new york, new york USA Markus and Mary, the strength that the two of you have possessed - from the moment you learned of Simon's disease - has always made me feel somewhat slack at the sight of myself. To have the courage to face the day-to-day struggles, to accept life "in the moment" as you have, is a trait that I do not possess. Most of us are never forced to determine whether or not we'd be able to withstand the heartache that has come with your experience, but my gut tells me that there are few people who could handle the life you've led the past few years with as much honesty, spirit, and solidarity as you all have shown. It is both beautiful and tragic, and so painfully complicated. We will always remember Simon for his bravery and sensitivity to the world, for his curly hair and his smile. All of our love to you and a thousand hugs for Miriam. Courtney and Marley Wednesday, August 11, 2004 -- 20:01:47 (EDT) Name: Rachael in SLC -- Email: geminimoon@csolutions.net Location: SLC, The Inca's of Peru had an old expression The Flowering of my Tears This represented the time of fulfillment which came after a long period of difficulty and sorrow. Our tears continually water the Earth and finally, after we have cried and cried, after we have let go of so much, after we have passed through the searing fires of initiation and the dark night of the soul, the flowers start to grow. These aren't just ordinary flowers, they are precious, sacred flowers. Flowers that can only grow after we have passed through a time of struggle and transformation, a time of rebirthing into a new life. May your tears always flower, ~ Kathy Doore ~ Wednesday, August 11, 2004 -- 17:33:19 (EDT) Name: Irene Judmayer Location: Linz, Austria Große Umarmung, Irene Wednesday, August 11, 2004 -- 16:01:23 (EDT) Name: Gari Stein Wednesday, August 11, 2004 -- 11:54:43 (EDT) Name: Barbara Brookens-Harvey -- Email: billbarbmo@msn.com Location: Ann Arbor, Mi. USA I am thinking of you all and sending much love, strength, and positive energy. You and Simon have taught us all so much these last few years. Thank You for sharing. You are in my Heart, Love, Barbara Brookens-Harvey Wednesday, August 11, 2004 -- 11:53:11 (EDT) Name: Sally Blodgett Olson -- Email: sallybolson@yahoo.com Location: Oberlin, LOVE, Sally (Sarah, Amy,and Gram/Jane) Wednesday, August 11, 2004 -- 09:49:55 (EDT) Name: David Craig -- Email: davcraig@iupui.edu Location: Indpls, IN Tuesday, August 10, 2004 -- 23:48:43 (EDT) Name: Keri Anderson -- Email: Keria23@hotmail.com Location: SLC, Just thinking of you. Thank you for sharing the beautiful pictures of your family at Red Butte and the glorious sunset. So appropriate for Simon. Tuesday, August 10, 2004 -- 23:44:50 (EDT) Name: Elizabeth and Whitney -- Email: ewweisberg@comcast.net Location: Salt Lake City, Utah US Whitney and I spent a long time going through all of your postings and pictures on your website. Whitney wanted to look at every picture of Simon. We will be at the Memorial on August 28th. Sincerely, Bill, Elizabeth, Whitney Weisberg Tuesday, August 10, 2004 -- 20:05:08 (EDT) Name: Lou -- Email: skiptoskiptolou Location: Knoxville, TN USA Some day we will understand why the children have to go so young. I will always remember Simon from the things Josh has told me while he was at MSKCC NY doing 3F8 antibodies with Simon. I shall never forget you Mary, you were also a great help to me while the boys were doing the treatments. Thank You for sharing Simon journey with the group.I always look forward to your post to the group. Faith, Hope & Love, Lou/mom to sherry/grandmother to Josh dx.6/01 Tuesday, August 10, 2004 -- 18:26:58 (EDT) Name: Deborah Orlowski -- Email: orlowski@umich.edu Location: Ann Arbor, MI USA I was once told that our souls come to this world to learn...and perhaps to teach. And once a soul learns what it came to learn, it passes on again. This has always given me great comfort because it means that Simon left us because it was his time to leave. He did what he needed to do and although we will never know what that was, he does and he is happy. I don't know what Simon came to earth to learn, but I DO know what he taught the rest of us. Through him and his joy and zest for life, he showed us how to live. Because of him, we have come to know a family that is truly extraordinary. A family that has shown the rest of us how to better appreciate a sunset, to value what we have, to love more deeply and fully and to find joy, peace and yes, even happiness, among the most difficult of life's lessons. Thank you Miriam for being such a loving and wonderful sister. Thank you Markus for being the father and husband who is a role model for all. Thank you Mary for your honesty and willingness to share. And thank you Simon for being you and for bringing us the wonderful family we know as the Vodoseks. You will all continue to be in my prayers. Deborah Tuesday, August 10, 2004 -- 16:41:53 (EDT) Name: Cassie Palisky -- Email: Sassie121087@aol.com Location: Chagrin Falls, Ohio USA Tuesday, August 10, 2004 -- 15:54:35 (EDT) Name: Tina Diekmann -- Email: mgtkd@business.utah.edu Location: Salt Lake City, UT USA Seeing the photo of the incredibly beautiful sunset from Red Butte Garden on the day Simon passed away, I now will always think about Simon everytime I see that stunning view over the Great Salt Lake. Today Carter asked where Simon was since he had heard that Simon had died. After a few moments of thinking about it, Granger said "Simon knows where he is." What a profound answer for a six year old. Sometimes little kids seem to understand these things so well. Love, Tina, Bart, Granger, and Carter Tuesday, August 10, 2004 -- 14:27:13 (EDT) Name: Sylvia Pituch -- Email: smp75@msn.com Location: Allentown, PA USA We remember them When we are weary and in need of strength We remember them When we are lost and sick at heart We remember them When we have joys we yearn to share We remember them So long as we live, they too shall live for they are now a part of us as We remember them In the blowing of the wind and in the chill of winter We remember them In the opening of buds and in the rebirth of Spring We remember them In the blueness of the sky and in the warmth of the sun We remember them In the rustling of leaves and in the beauty of Autumn We remember them In the beginning of the year and when it ends We remember them The above was received during the chaplaincy course that I am taking. You continue to be in my prayers as you adjust to a "new normal". God Bless You. ~ Sylvia Tuesday, August 10, 2004 -- 14:09:56 (EDT) Name: Edie Robbins -- Email: edier@provide.net Location: Ann Arbor, Michigan USA Edie Tuesday, August 10, 2004 -- 13:14:57 (EDT) Name: hava kaplan -- Email: chelton@umich.edu Location: Ann Arbor, MI USA Dear Mary, Markus and Miriam, I am very sorry that Simon died. I will always remember him. This is a prayer. Love, Hava Tuesday, August 10, 2004 -- 12:27:11 (EDT) Name: Deanna Misaka -- Email: dmisaka@ihc.com Location: SLC, UT USA Tuesday, August 10, 2004 -- 11:12:16 (EDT) Name: Carla, Beatriz and Eduardo Silva -- Email: silva@engin.umich.edu Location: Ann Arbor, MI USA Tuesday, August 10, 2004 -- 10:53:39 (EDT) Name: Pamela Matousek -- Email: pam@dumc.net Location: Davidsonville, MD USA Monday, August 09, 2004 -- 20:07:04 (EDT) Name: Corinne Anderson -- Email: corinneander@comcast.net Location: Salt Lake City, Utah "Thank You" seems such a trite thing to say to a family who has enfolded so many people into their lives and into their love. You have given an amazing gift to so many by sharing your journey with your beloved Simon. We are reminded to cherish each moment of our lives, to always remember our power when we feel powerless, and to truly love each other. A quote from "FINAL GIFTS"... "Life is eternal, and love is immortal, and death is only a horizon, and a horizon is nothing save the limit of our sight." Go Captain Underpants, GO! Monday, August 09, 2004 -- 18:29:43 (EDT) Name: Maja -- Email: majafurlong@telus.net Location: Delta, BC CANADA Monday, August 09, 2004 -- 18:02:20 (EDT) Name: Brenda -- Email: waycasy@comcast.net Location: PLeasant Grove , Ut Monday, August 09, 2004 -- 16:51:09 (EDT) Name: Stone Bear -- Email: mfarmer@dcwis.com Location: Baileys Harbor, Wisconsin USA Monday, August 09, 2004 -- 12:28:48 (EDT) Name: Rachel Kimball -- Email: rachel.kimball@utah.edu Location: Salt Lake City, Utah Our hearts, our love, our thoughts, and our prayers are with you. What a beautiful boy and what a wonderful gift you have shared with us all. Your ability to let us all in on your heartache, suffering, joy, endurance, bravery, love is truly an inspiration. Simon will undoubtly touch as many on his new journey as he has touched here on earth. Thank you Simon for your wonderful life. Thank you Marcus, Mary, and Miriam for sharing these most difficult moments with us. love, Miss Rachel, Miss Misha, Miss Judy, Miss Barb, Miss Julie, Miss Tad Monday, August 09, 2004 -- 11:07:47 (EDT) Name: Patrick Flynn -- Email: patrick.flynn@engenio-it.com Location: Wichita, KS USA My thoughts and prayers are with you. Thank you for sharing Simon's stories and pictures with us. I hope that Justin and Simon are playing today and that someday they will be able to explain to us what it's like to be where they are. Patrick stepfather to angel Justin Gray Monday, August 09, 2004 -- 11:02:13 (EDT) Name: Carmen Rivera -- Email: mosaic@mindspring.com Location: San Pedro, CA USA My heart filled with great sadness on learning of Simon's passing. Love is everything. Simon had everything. He always will. Simon is in my prayers. Thank you for bringing him into my life! Love, Carmen Monday, August 09, 2004 -- 10:29:20 (EDT) Name: An Arizona Family To the Vodosek Family, may your days from here on out be filled with the bright and cheerful memories of Simon, and all the special times you spent with him on this earth. Although his time was short by our standards, the love you gave him is the love he gave back that is still there in your hearts and will see you all through this uneasy time. The pain does go away over time and is replaced by those great memories that come rushing in. Whether it's a song you hear on the radio, a movie you watch on TV, a place you drive past, or another child saying something that catches your ear, it's just Simon's way of letting you know that Captain Underpants is not far away at all. God bless you all and give you the continued strength to help each other through this time. Sincerely, An Arizona Family Monday, August 09, 2004 -- 08:43:42 (EDT) Name: code_blue_kkiimm33 Location: , MA USA Monday, August 09, 2004 -- 07:07:43 (EDT) Name: Marfa Seewald -- Email: marfa.seewald@htc-gmbh.com Location: Heidelberg, Germany Liebe Mary, lieber Markus, liebe Miriam, ich habe Euch alle bewundert wie stark und zuversichtlich Ihr wart. Ihr habt nicht viel von mir gehört in den letzten 3 Jahren, aber in Gedanken war ich oft bei Euch und habe mit Euch und allen anderen Menschen, die Euch lieben und nahe stehen, gehofft, daß alles wieder gut wird. Umso trauriger war ich, als ich heute morgen nach der Intro mit dem kleinen Schmetterling die (neue)Zeichnung von Simon sah und nicht mehr das Photo von ihm... Ich kann von hier aus nicht mehr tun als an Euch zu denken, zu wünschen, daß Ihr auch in Zukunft zueinander haltet und Euch aus Schmerz nicht voreinander verschließt. Eines Tages wird sich wie in der Geschichte vom Waterbug eine neue Welt auftun in die Euch Simon begleiten wird. Alles, alles Liebe Marfa Sunday, August 08, 2004 -- 22:41:28 (EDT) Name: Lisa Mason -- Email: lamgem@earthlink.net Location: Chicago, Illinois All my love, Lisa Mason Sunday, August 08, 2004 -- 22:30:21 (EDT) Name: Peggie Y. -- Email: glassact@craftersaccents.com Location: La Mesa, CA USA Jesus Comforts His Disciples - The God of All Comfort John 11.1-4 "Do not let your hearts be troubled. Trust in God; trust also in me. In my Father's house are many rooms; if it were not so, I would have told you. I am going there to prepare a place for you. And if I go and prepare a place for you, I will come back and take you to be with me that you also may be where I am. You know the way to the place where I am going." Matthew 5.4 Blessed are those who mourn, for they will be comforted. 2 Corinthians 1.3-4 Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God. GOD BLESS ALL Peggie Sunday, August 08, 2004 -- 21:46:55 (EDT) Name: Debbie Hume Location: San Luis Obispo, CA USA I sit at my computer bawling. I have no answers and no words. I am sooo sorry for the loss of sweet Simon. My heart pours out to you all. I will be a faithful prayer servant. I am hoping that somewhere amongst all this saddness their is a ray of sunshine coming from the sky. As I know Simon is happily playing with all the other angel children. With love, Debbie Sunday, August 08, 2004 -- 21:34:47 (EDT) Name: Pat Newton(Lexy's Nana) -- Email: pnewt4@aol.com Location: Nederland, Tx Sunday, August 08, 2004 -- 20:33:06 (EDT) Name: Muffy Ferro -- Email: mferro@qwest.net Location: Salt Lake City, UT Sunday, August 08, 2004 -- 20:06:49 (EDT) Name: Jennifer McIntosh -- Email: billandjen@pivot.net Location: Standish, ME USA Lawrie told me of Simon's passing. I am so sorry for your loss. I will keep Simon's beautiful smile and spirit in my heart and will say a special prayer for him when I put my kids to bed tonight. My love to you all, Jenni Sunday, August 08, 2004 -- 19:53:37 (EDT) Name: Susan Hartman Location: Ann Arbor, Sunday, August 08, 2004 -- 19:26:31 (EDT) Name: Emily Location: London, UK Sunday, August 08, 2004 -- 16:53:34 (EDT) Name: B.J. -- Email: ebjoel225@aol.com Sunday, August 08, 2004 -- 14:54:52 (EDT) Name: Cam and Joan Borton Location: Jefferson, NH Sunday, August 08, 2004 -- 13:06:35 (EDT) Name: Linda and Mell -- Email: gmelville2004@yahoo.com Our lasting thoughts of Simon will be his welcoming his boisterous cousins to play in his magnificant playroom last March. We belive this will also be the lasting impression of our grandchildren all of whom, like us, are saddened by Simon's passing on. All of you did your utmost, and it must be a very, very sad, strange and empty feeling to have an ending leaving you with thoughts and less to do. We hope to be with you to celebrate his bright life. You have been and continue to be in our thoughts and prayers. Love, Linda and Mell Sunday, August 08, 2004 -- 11:41:00 (EDT) Name: dean and stacie mason -- Email: ddeanmason@hotmail.com Location: eden prairie, mn usa "We know not what we shall be; but we may be sure we shall be more not less than we were on earth. Our natural experiences (sensory, emotional, imaginitive) are only like the drawing, like pencilled lines on flat paper. If they vanish in the risen life, they will vanish only as pencil lines vanish from the real landscape, not as a candle flame that is put out but as a candle flame which becomes invisible because someone has pulled up the blind, thrown open the shutters, and let in the blaze of the risen sun." (from "Transposition" The Weight of Glory) Our prayers and thoughts will continue with you as your family now goes forward. Love, Dean and Stacie Mason Sunday, August 08, 2004 -- 11:32:02 (EDT) Name: Gari Stein -- Email: Garistein@aol.com Location: Ann Arbor, MI Sunday, August 08, 2004 -- 07:26:40 (EDT) Name: Doris Witmer -- Email: LilDAWit@aol.com Location: La Crosse, WI USA Sunday, August 08, 2004 -- 01:29:23 (EDT) Name: Marc Berg -- Email: mdbergmd@comcast.net Location: Tucson, AZ Sunday, August 08, 2004 -- 00:39:59 (EDT) Name: Lynn Solis -- Email: LynnSolis3@aol.com Location: LaVergne, TN USA My Deepest Sympathy, Lynn Solis Sunday, August 08, 2004 -- 00:25:01 (EDT) Name: Steve and Meg Robertson -- Email: stevemeg@usfamily.com Location: St. Paul, MN Thank you for sharing your dear Simon with us through this web site. In spite of never having met him, we feel as if part of Simon's spirit of life will always be with us. Love, Steve and Meg. Saturday, August 07, 2004 -- 23:07:26 (EDT) Name: Hansen Family -- Email: jamesodder2@aol.com Location: Milford, NH Saturday, August 07, 2004 -- 22:53:07 (EDT) Name: code_blue_wildcat413us Location: Butner, NC Saturday, August 07, 2004 -- 22:36:28 (EDT) Name: Don and Marion Robertson -- Email: marionrobertson@earthlink.net Location: Chevy Chase, MD USA Saturday, August 07, 2004 -- 21:48:00 (EDT) Name: Heather -- Email: hdaz@umich.edu Location: Ann Arbor, MI US Saturday, August 07, 2004 -- 21:22:28 (EDT) Name: Andrew and Louise Chang -- Email: acc@alum.mit.edu Location: Ann Arbor, MI Thank you for sharing your family's story. Our family has learned from and been inspired by Simon's courage as well as your love and strength. With our heartfelt condolences, Emma, Matthew, Louise and Andrew. Saturday, August 07, 2004 -- 20:45:08 (EDT) Name: Lori & Mike -- Email: caring_hearts_n_hugs@yahoo.com Location: Sterling Heights, MI Saturday, August 07, 2004 -- 19:55:54 (EDT) Name: conner radcliffe & family -- Email: gladeshepherd@aol.com Location: s.l.c., utah we appreciate the times we were able to spend with Simon. we are very sad. our thoughts are with you. love, conner, chase, olivia, melissa, and david Saturday, August 07, 2004 -- 19:53:03 (EDT) Name: Don Location: , Canada Saturday, August 07, 2004 -- 18:14:48 (EDT) Name: claire Location: , England Saturday, August 07, 2004 -- 18:03:23 (EDT) Name: Keri Anderson -- Email: keria23@hotmail.com Location: SLC, UT My thoughts are with you today. Please tell Miriam that Ashley sends her love. Saturday, August 07, 2004 -- 17:47:23 (EDT) Name: Paige Winkler (12 yrs. old) -- Email: winklers1991@yahoo.com Location: Wisconsin Rapids, WI USA "See to it that you do not despise one of these little ones; for I say unto you, that in heaven their angels do always see the face of my father which is in heaven" (Matthew 18:10) Saturday, August 07, 2004 -- 16:36:38 (EDT) Name: Marta, Paul, Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, All our love, Marta, Paul and Sam Saturday, August 07, 2004 -- 16:25:43 (EDT) Name: Frances Winkler & Family -- Email: winklers1991@yahoo.com Location: Wisconsin Rapids, WI USA Saturday, August 07, 2004 -- 16:06:42 (EDT) Name: Quentin Smith -- Email: q.m.smith@att.net Location: Ann Arbor, MI Saturday, August 07, 2004 -- 14:32:49 (EDT) Name: Abe and Lisa Bakhsheshy -- Email: bakhsheshy@comcast.net We are deeply sorry for your loss. What a brave and beautiful young boy Simon was. We know that he will leave many beautiful memories with you and Miriam. Sincerely, Abe and Lisa Bakhsheshy Saturday, August 07, 2004 -- 13:22:52 (EDT) Name: Kris Location: Clinton, NY Take care, Kris Saturday, August 07, 2004 -- 13:03:31 (EDT) Name: Ethel Lautenbach -- Email: niteangl1@comcast.net Location: Grand Rapids, Michigan USA Saturday, August 07, 2004 -- 11:21:08 (EDT) Name: stephanie saenz Location: slc, ut stephanie Saturday, August 07, 2004 -- 10:55:45 (EDT) Name: David Craig -- Email: davcraig@iupui.edu Location: Indianapolis, IN Dear Simon, I hope your beautiful dream's still wander freely in heven. Rest in peace Simon. Love, Claudia We miss you all very much. With heavy hearts, fond memories and renewed hopes for all of you, we're thinking about you all the time. Love, David, Jocelyn, Claudia and Eliza Saturday, August 07, 2004 -- 09:59:17 (EDT) Name: Melissa -- Email: melissa.houston@slcgov.com Location: Salt Lake City, UT USA Saturday, August 07, 2004 -- 09:58:02 (EDT) Name: Gari Stein -- Email: Garistein@aol.com Location: Ann Arbor, Saturday, August 07, 2004 -- 08:48:52 (EDT) Name: Martha Hiat (Gilbert) -- Email: martyg@gwi.net Location: Topsham, Maine USA Saturday, August 07, 2004 -- 03:35:14 (EDT) Name: Kathryn Bartholomew -- Email: kate@tinypineapple.com Location: , Utah USA The following quote has never been more perfectly applied: Now cracks a noble heart. Good night sweet prince: And flights of angels sing thee to thy rest! Much Love, Kate Saturday, August 07, 2004 -- 03:06:30 (EDT) Name: Diane Donnarumma -- Email: ddodsd@yahoo.com Location: Quincy, MA USA Diane Saturday, August 07, 2004 -- 01:13:06 (EDT) Name: erik Location: davidsonville, MD The Lord is my shepherd; I shall not want. He maketh me to lie down in green pastures: he leadeth me beside the still waters. He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake. Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over. Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever. Psalm 23. God be with you all - Erik and family Saturday, August 07, 2004 -- 00:31:33 (EDT) Name: Amy, David, Jonathan and Miriam H. -- Email: amybeth@umich.edu Location: Ann Arbor, MI USA We are so blessed that you allowed us to share a few of Simon's precious last moments. We know he has gone on to a place where he is no longer tethered to his port, or to his pain. Yet our hearts go out to you, with love and thoughts of peace and strength. May God and your community bring you comfort in these difficult times. Love, the Hamermeshes Friday, August 06, 2004 -- 23:47:24 (EDT) Name: Ruth Ann Church -- Email: johnruthann@mindspring.com Location: Ann Arbor, MI USA We were shocked to hear the news today. How could brave, amazing Simon die? We really only knew him during his first four years of life -- but those sure are a lot of memories! Thank you for the honor of knowing Simon through this website during the past 3 years while we've lived so far away. May God hold you in the palm of God's hand. - Ruth Ann and John Friday, August 06, 2004 -- 23:05:43 (EDT) Name: Elizabeth Kent -- Email: randekent@aol.com Location: Oregon House, CA Friday, August 06, 2004 -- 22:24:20 (EDT) Name: Lee Williams Friday, August 06, 2004 -- 22:07:51 (EDT) Name: Lucy and Ben Location: Baltimore, MD USA Please know that we are with you and are sending out our love to you. I am picturing Simon at Crystal wearing one of the beautiful sweaters you knit him, Mary, wearing those great sandals with socks and with a huge grin and chuckle. I admire your spirit, perseverance and strength. We are all better for having known and loved Simon. Much love, Lucy, Ben, Grace and Logan Friday, August 06, 2004 -- 21:54:00 (EDT) Name: Rachael from SLC -- Email: geminimoon@csolutions.net Location: Santa Rosa, CA Friday, August 06, 2004 -- 21:45:34 (EDT) Name: Liddy, Martin, Justin and Jake -- Email: martlidjustjacob@comcast.net Location: Cambridge, MD Friday, August 06, 2004 -- 21:44:49 (EDT) Name: Rebecca Location: Oberlin, Tonight we lit a candle for each of you, Mary, Markus, Miriam, and our dearly loved angel, Simon. We said our sorrows and wishes to each other; we remembered his sweet spirit together; we respected and admired your entire family as beacons of courage and love, especially Simon. Through our tears and hugs, Schuyler professed his certainty about Simon's reincarnation. From our family to yours - to all your extended family, too - we send you love and blessings at this sacred moment. Rebecca, Randy, Emma Rose and Schuyler Samuel Friday, August 06, 2004 -- 21:31:22 (EDT) Name: Sally Hennessy -- Email: sbhennessy@comcast.net Location: Ann Arbor, MI Thank you for sharing Simon with all of us. May you be comforted by the bounty of love that surrounds you today. Love, Sally, Alan, Nate and Hannah Friday, August 06, 2004 -- 21:02:59 (EDT) Name: Kathy Hoar -- Email: Kathysim56@msn.com Location: Boca Raton, Fl USA My heart breaks for you at this time. We have not met but I feel I know you through the nb list serve. I sent a card in the mail as you have really given so much as this list serve and I did feel like I knew Simon. I am glad you were all together and that Simon was able to let you know he wanted to sit up. He was such a fighter. Thanks for sharing Simon and your family experiences with us. It has been very helpful. Aunt Kathy to Matthew, age 4, NBIV Friday, August 06, 2004 -- 20:22:58 (EDT) Name: Anne, Tom, and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, Mn USA We love all of you, and hope for peace and comfort in the coming days. Anne, Tom, and Johannes Friday, August 06, 2004 -- 19:46:13 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY But to those who knew him best, and will miss him the most, we send our deepest sympathy. You continue to be in our thoughts and prayers. For reasons I didn't entirely understand at the time, last night when I visited this website I ended up looking at some of the oldest photos in the photo gallery. But now I'm thinking that by looking backward in time I may actually have been glimpsing Simon as he is now: with a full head of curls, that impish grin, and no outward evidence of disease -- running free, without his port, as Mary wrote. He will be missed here, but I trust that where he is now he is once again whole ... and wholly himself. Bravo, Simon. Yours was a life very well lived. May we all learn from your fine example. Wishing you all, day by day, a little more peace in your hearts, Kris and Family P.S. The photo from the Exploratorium is a treasure -- thank you for sharing it. Friday, August 06, 2004 -- 19:43:55 (EDT) Name: Grandpa Gene and Grandma Gail -- Email: gailsweet@zoominternet.net Location: Ashland, OH U.S.A. Sweet Hugs From All The Sweets and Sweet Angel Luke, always http://www.caringbridge.org/oh/lukesweet Friday, August 06, 2004 -- 17:40:52 (EDT) Name: Amy Trahan -- Email: atrahan@umich.edu Location: Ann Arbor, MI USA Friday, August 06, 2004 -- 17:25:30 (EDT) Name: Natalie Martin-Rak -- Email: vladanat@comcast.net Location: Jacksonville, FL Friday, August 06, 2004 -- 17:09:39 (EDT) Name: Shelda Smith -- Email: sheldas@umich.edu Location: Ann Arbor, MI USA Best to each of you, Shelda Smith Friday, August 06, 2004 -- 17:02:01 (EDT) Name: Peg Gordon -- Email: pegm701@yahoo.com Location: Ann Arbor, MI Friday, August 06, 2004 -- 16:48:20 (EDT) Name: Carla Ruggiero -- Email: cruggier@umich.edu Location: Washington, DC USA Friday, August 06, 2004 -- 16:43:07 (EDT) Name: Gari Stein Friday, August 06, 2004 -- 16:08:38 (EDT) Name: Amber Dimkoff -- Email: adimkoff@yahoo.com Location: , Europe My heart, thoughts, and prayers are with you. Simon must be having a wonderful time right now despite how much we miss him. Love always, Amber Friday, August 06, 2004 -- 16:03:15 (EDT) Name: Kathy Duderstadt -- Email: duderstadt@sbcglobal.net Location: san antonio, tx usa I told Marina earlier this afternoon that Simon had passed away. She looked around a bit...said she didn't understand... spent some time reflecting...and then said, "Simon was such a good person that.... well....maybe....he'll become an antelope..." Then came some tears. Our love and thoughts continue to be sent to Mary, Markus, Miriam, and....of course...our good friend Simon. We also send our best thoughts and thanks to the family, friends, and health personnel who have and continue to help the family. Love, Kathy, Nathan, Marina, and Jane Friday, August 06, 2004 -- 16:02:55 (EDT) Name: Keri Anderson -- Email: keria23@hotmail.com Friday, August 06, 2004 -- 15:39:03 (EDT) Name: Angie Hendrickson -- Email: Angie_Hendrickson@alticor.com Location: Grand Rapids, MI USA Friday, August 06, 2004 -- 15:14:10 (EDT) Name: Beth Hospadaruk -- Email: hospadaruk@comcast.net Location: Ann Arbor, MI Your little angel will always be with you. I'm sad you had to let him go.. too soon. I'm sending a very big, long, warm hug to you all. Be brave, like Simon....thank you for sharing him with us all, Love, Beth and family Friday, August 06, 2004 -- 15:10:18 (EDT) Name: Judi Stonik -- Email: jstonik@umich.edu Location: Ann Arbor, MI USA Friday, August 06, 2004 -- 15:06:38 (EDT) Name: Sherry Powell, mom to Josh -- Email: srpowell@bwsc.net Location: Knoxville, TN I am sooooo sorry for your loss! I will be eternally grateful our paths crossed & we got the pleasure of meeting sweet Simon. We will never forget him & his "Simon says" words of wisdom. We will continue to hold you close in thought & prayer. Friday, August 06, 2004 -- 15:05:29 (EDT) Name: A, S, R Location: Oakland, CA Friday, August 06, 2004 -- 15:03:37 (EDT) Name: Lance -- Email: lsandel@umich.edu Location: Ann Arbor, Michigan Love, Lance Friday, August 06, 2004 -- 15:00:35 (EDT) Name: Jacqui & George Shambaugh Location: Oakton, VA USA Friday, August 06, 2004 -- 14:56:08 (EDT) Name: Jill -- Email: jills@drizzle.com Location: Seattle, WA USA My mom let me know that Simon passed away earlier this morning. I am so sad and am thinking about all of you. Love, Jill Friday, August 06, 2004 -- 14:40:47 (EDT) Name: Bernadette Edens -- Email: jmedens56@yahoo.com Location: Birmingham, Alabama United States Friday, August 06, 2004 -- 14:37:51 (EDT) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, M,L,L and C Friday, August 06, 2004 -- 14:21:52 (EDT) Name: Jamie Hine -- Email: jhine@umich.edu Location: Washington, DC USA There is a special place in my heart for all of you. Carla and I were both so blessed to know Simon. I know that we lost touch for some time, but I truly know that I bumped into Mary that afternoon on the street for a special reason; his name is Simon. I am always so thankful that he came back into our lives. For me, I will always remember Simon racing his new bike up and down the courtyard of family housing, slurpy and crunchy noodles from the Chinese restaurant, the excitement of building new playmobile and the fun we shared on the sculpture in front of the Art Museum. These were and will always be special memories for me. I pray for all of you and take comfort knowing that Simon is now looking over all of us. Friday, August 06, 2004 -- 14:20:37 (EDT) Name: Mary Walker -- Email: mary@walkeragency.com Location: Scottsdale, AZ USA In His Love Friday, August 06, 2004 -- 14:15:29 (EDT) Name: Stephanie Deal -- Email: stephanie.deal@kcc.com Location: Lawrenceville, GA USA Thank you for sharing Simon's story with the world and all of us. Friday, August 06, 2004 -- 14:07:31 (EDT) Name: Sylvia -- Email: smp75@msn.com Location: Allentown, PA Simon's family...I am so sorry. Thank you for sharing your journey. Love, Sylvia Friday, August 06, 2004 -- 13:59:00 (EDT) Name: Kare, Kirk, & Mark -- Email: kzaruba@umich.edu Location: Ann Arbor, MI Friday, August 06, 2004 -- 13:52:54 (EDT) Name: Katrina Zook -- Email: kzook@uwyo.edu Location: Laramie, WY Words cannot express my heartbreak at the loss of your beautiful little boy. Simon had a more profound family/love experience during his short life on earth than most do in a much longer lifetime. You all must know that you did everything right. What a wonderful gift and life you gave him. I will remember Simon and youf family for your strength, courage, and grace. Much love, Katrina Friday, August 06, 2004 -- 13:41:23 (EDT) Name: Gretchen Spreitzer -- Email: spreitze@umich.edu Location: Ann Arbor, MI Friday, August 06, 2004 -- 13:41:06 (EDT) Name: Sarah Williams -- Email: sarahkwilliams@hotmail.com Location: Salt Lake City, UT USA Love, Sarah Friday, August 06, 2004 -- 13:40:48 (EDT) Name: Caroline, Matt and Hava -- Email: chelton@umich.edu Location: ann arbor, mi usa I wish we could be there to hug you and grieve with you, but the waterbug story really helped me, which i hadn't read until I heard today's news. You raised a wonderful boy and you helped his passing in the most compassionate, brave and selfless way. We love you all. Friday, August 06, 2004 -- 13:36:47 (EDT) Name: matt kaplan -- Email: mlkaplan@umich.edu Location: ann arbor, MI We were so sad to read of Simon's passing. He was a very strong and special child, and we know you will miss him terribly. All of you have been such an amazing support for Simon over the past three years and, especially, during his last few weeks. We hope you take comfort in each other and the many memories you have of Simon. Our thoughts and prayers are with you all. With love, Matt, Caroline, and Hava Friday, August 06, 2004 -- 13:21:37 (EDT) Name: The Connollys -- (another NB Family) -- Email: padwik@yahoo.com Location: Fenton, MI USA Friday, August 06, 2004 -- 13:21:21 (EDT) Name: Paula Caproni -- Email: pcaproni@umich.edu I am very saddened to hear of Simon's passing, and I thank you for your devotion in keeping us informed of Simon's progress and for those wonderful photographs you posted on the website. Speaking on behalf of my family, we wish you the comfort of family, friends, and sweet memories. And, to Simon, we wish you a sweet and peaceful journey. Love, Paula, Charlie, Julia and Leah Friday, August 06, 2004 -- 13:14:27 (EDT) Name: Shirli Kopelman -- Email: shirli@bus.umich.edu Location: New Orleans, Friday, August 06, 2004 -- 13:10:04 (EDT) Name: amy -- Email: asheon@umich.edu Location: ann arbor, mi I weep for you all and thank you so much for leaving us with the transcendent portrait of Simon. When I get home from work today, I will share the waterbug story with my son Jesse and then propose that we release the tadpole we've raised into a frog to be free. The day I read the waterbug story is the same day that we found the frog, for the first time, perched on a rock in the acquarium with his head above water as he made his transition from his first life to his second, breathing air instead of water. We always said we'd let him go when he became a frog but never knew when we would know what would be the right time. It will be a wonderful "teachable moment" with my son and mean that Simon will live on for all of us everytime we scan a stream for tadpoles or, as seems to be increasingly rare, see a live frog in the wild. With profound sorrow and thanks for the gifts you have bestowed on all of us in the Simon's Place community. Friday, August 06, 2004 -- 12:42:12 (EDT) Name: Paulina Pevitt -- Email: sazza1291@yahoo.com.au Location: Mount Gambier, SA Australia P. S one sweet day Friday, August 06, 2004 -- 12:41:30 (EDT) Name: Paulina Pevitt -- Email: sazza1291@yahoo.com.au Location: Mount Gambier, SA Australia P. S one sweet day Friday, August 06, 2004 -- 12:41:09 (EDT) Name: Marcie Obstfeld -- Email: ppimarcie@aol.com Location: Irvine, CA USA How sad we are that Simon has passed. As I was told after my Dad died a few years ago, he will live on in your hearts, in your photos, in your stories and your thoughts. I recall the fun we had a few years ago at his birthday party in back of your old apt., the meals at Seva, the drumming at Gari's, the sweet child with that mass of curls. I know he will be missed very much. May you find some comfort in your family and friends. Lots of love, Marcie, David, Rachel and Noah Friday, August 06, 2004 -- 12:21:14 (EDT) Name: kay kirk heather and tyler -- Email: kaybeaton@csi.com Location: Park City, UT Friday, August 06, 2004 -- 10:20:34 (EDT) Name: Liddy, Martin, Justin and Jake -- Email: martlidjustjacob@comcast.net Location: Cambridge, MD USA Thursday, August 05, 2004 -- 23:39:57 (EDT) Name: Dannille Smith -- Email: dfitsmith@msn.com Location: Ann Arbor, MI When I read your updates,I am reminded of a family member's final stage of cancer 8 years ago. How precious these days you have together truly are and how treasured those memories are to me. Sitting, cuddling, holding, praying, singing. One of the songs that I remember most, we sang softly: "Soon and very soon, we are going to see the King. Soon and very soon, we are going to see the King. Soon and very soon, we are going to see the King. Alleluia, Alleluia, we're going to see the King." Still working on the Lemonade Stand in Simon's honor to be held August 21. (Ann Arborites or anyone, contact me to help...) You are all very special and very wonderful. Peace and comfort to all of you. Dannille Smith Thursday, August 05, 2004 -- 23:00:28 (EDT) Name: Iris -- Email: iris_taylor@health.qld.gov.au Location: Brisbane, Qld Australia Gentle Hugs Thursday, August 05, 2004 -- 23:00:09 (EDT) Name: Iris -- Email: iris_taylor@health.qld.gov.au Location: Brisbane, Qld Australia Gentle Hugs Thursday, August 05, 2004 -- 16:30:54 (EDT) Name: Jeanine -- Email: JTBerk2@cs.com Location: Chicago, IL USA Thursday, August 05, 2004 -- 15:00:07 (EDT) Name: Madi, Lexi, Lawrie and Curt Location: Seattle, We are with you in spirit. M, L, L, and C Thursday, August 05, 2004 -- 14:27:25 (EDT) Name: Sylvia -- Email: smp75@msn.com Location: Allentown, PA Thursday, August 05, 2004 -- 06:52:44 (EDT) Name: Jane -- Email: janedut@umich.edu Location: Ann Arbor, Michigan As the sun arrives for another day, we are thinking of you-- all of your strength and wisdom. We send you peace in this day. May its splendor bless each of you. Love, Jane, Lance, Cara and Emily Thursday, August 05, 2004 -- 01:18:49 (EDT) Name: Rachael Coleman -- Email: geminimoon@csolutions.net Location: Santa Rosa, CA You all are held so near. I just spent two days at Harbin Hot Springs. Thought of Simon a lot while I was there. Today we saw an amazing orange dragonfly. I told my friends the waterbug story and talked about Simon for a while. After a couple minutes a second orange dragonfly joined the first and flew around the heart-shaped pool of warm water. It was all so beautiful. Every moment is a gift. Much love, Rachael Thursday, August 05, 2004 -- 00:37:20 (EDT) Name: Julie Dybdahl -- Email: Juliedybdahl@aol.com Location: Ann Arbor, MI USA Thank you for keeping us all updated. Simon has a 7 year old's lungs and heart -- they just keep on chugging along. This is what happened with our dear Allison, and I know how hard, but how precious these last days are. I'm glad to see you have the Water Bug Story. We have it too, only ours has a different title. I'd been looking for our copy to send to you, but I'm glad you already have it. It does help. Much love and strength to all of you, Julie Wednesday, August 04, 2004 -- 23:32:54 (EDT) Name: Anne, Tom, and Johannes -- Email: doyleyad@stolaf.edu Location: Northfield, MN USA Let me add our voices and our thoughts to the hundreds of others who stand by you through these days. We hope for peace, and painless days and nights for dearest Simon, and strength and solace for all of you dear sweet souls. If there is strength in numbers, know that we are all here, and there, in a way, sending our love as comfort and a guiding light. we love you, Anne, Tom, and Johannes Wednesday, August 04, 2004 -- 22:44:33 (EDT) Name: David Craig -- Email: davcraig@iupui.edu Location: Indianapolis, IN Though we are far away, our thoughts are with you all--and all of the many amazing folks gathered around you there in Salt Lake. Love, David and the rest of the Sisson-Craigs Wednesday, August 04, 2004 -- 22:23:44 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY We continue to think about you and to wish you all peace: "And God will raise you up on eagle's wings, Bear you on the breath of dawn, Make you to shine like the sun, And hold you in the palm of His hand." Fondly, Kris, et al. Wednesday, August 04, 2004 -- 21:20:58 (EDT) Name: The Hammer's -- Email: hammertime311@comcast.net Location: Lakeland, MN USA I have been holding Simon and your family close in prayer each day and will continue to do so. My heart pains so much for you. Simon is an extraordinary young man and I know how very, very proud you are of him. God be with You. With Much Love and Respect, Vic and Sara Hammer Wednesday, August 04, 2004 -- 20:29:00 (EDT) Name: Gari Stein Location: Ann Arbor, MI Wednesday, August 04, 2004 -- 20:11:14 (EDT) Name: Kathryn Bartholomew -- Email: kate@tinypineapple.com Location: Uintah National Forest, Utah USA I am staying at a beautiful lodge in Daniel's Canyon (fairly near Strawberry Reservoir) in the Uintah National Forest. I have stayed in my room, mostly, because I'm trying to write a wedding ceremony for my brother and his fiancée which I am to officiate in a little over a week. But from my windows...there stands indescribably beautiful nature. The lodge property, that only goes twenty yards or so from the buildings, is cursorily marked by a log fence. Beyond that is the woodland. Majestic lodge-pole pines, coarse underbrush, yellow wildflowers and the ubiquitous quaking aspens. I keep the window open so that I can hear their gentle sound. Last night I also listened to the sounds of fantastic downpour; it descended thunderously for a while on the roof of the lodge. When it abated somewhat, I heard the rain falling on the forest and the grasses. I went out on my little balcony and sat in a rocking chair (a privilege the mosquitoes make challenging, otherwise). I rocked for a bit and thought of those for whom I care. You are all always in my thoughts. I check the website often (yes, unbelievably there is an internet connection here even though I’ve no cell phone coverage whatsoever). I hope for all of you to have comforting, enduring peace. Out my window, there is a single, brand-new tree; a mere ball of tiny leaves atop a slender, fragile “trunk.” It grows quite solitary amidst the meadow grasses. To me it has, somehow, been an embodiment of Simon - perchance because it is a frail, lovely thing struggling to reach another place – I’m not sure. Whatever the case, I am certain that its delicate appearance belies its actual resilience. It survived last night’s downpour; I believe it has the fortitude to do whatsoever it must. Love and peace to you, Kate Wednesday, August 04, 2004 -- 19:46:11 (EDT) Name: Brian -- Email: brian.conley@slc.k12.ut.us Location: SLC, UT You're my Superman, kiddo... And your family is the rest of The Justice League. Love, Brian Wednesday, August 04, 2004 -- 19:03:11 (EDT) Name: Marta, Paul, Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, Marta, Paul and Sam Wednesday, August 04, 2004 -- 17:35:43 (EDT) Name: Carol Shultheis Location: Ann Arbor, You are all such amazing, brave wonderful people. You have certainly given Simon and Miriam as full lives as possible under such challenging circumstances. You are an inspitation. I hope Simon's days are peaceful, and that you will find the strength you need. Wish I could be there to give you all a huge hug. Love, Carol Wednesday, August 04, 2004 -- 15:56:56 (EDT) Name: Keri Anderson -- Email: Keria23@hotmail.com Location: SLC, UT I pray for your family to recieve divine strength as the end nears. You have been through so much, and I pray for your endurance through these final hours. Wednesday, August 04, 2004 -- 15:41:11 (EDT) Name: Madi, Lexi, Lawrie and curt Location: Seattle, M,L,L,C Wednesday, August 04, 2004 -- 15:34:30 (EDT) Name: Karan & Steve Cutler -- Email: kdcutler@aol.com Location: Essex, VT Wednesday, August 04, 2004 -- 13:35:36 (EDT) Name: Shannon McBride -- Email: shannon@cavenet.com Location: Cave Junction, OR Michael Steelman directed me to your website. Do you remember the Heidelberg Project in Detroit? I remember I met you there. You are in my thoughts. Blessings from Oregon. Love, Shannon Wednesday, August 04, 2004 -- 12:04:48 (EDT) Name: Lindsay Gross Wilkinson Location: Grand Rapids, MI Wednesday, August 04, 2004 -- 08:07:22 (EDT) Name: Connie Lippert -- Email: conlippert99@yahoo.com Location: Ann Arbor, Michigan US We are thinking about you every day and hoping your journey is full with joy and peace. Here is my favorite poem. I hope you like it. "Speak to him, thou, for he hears, and Spirit with Spirit can meet, Closer is he than breathing and nearer than hands and feet" It's from a man named Tennyson. Love to your Mom and Dad and Miriam. Your friends, The Lipperts Wednesday, August 04, 2004 -- 08:05:09 (EDT) Name: Sally Hennessy -- Email: sbhennessy@comcast.net Location: Ann Arbor, Wednesday, August 04, 2004 -- 07:20:38 (EDT) Name: Lee Williams Wednesday, August 04, 2004 -- 00:18:29 (EDT) Name: Madeline Kachocki -- Email: kachocki@surewest.net Location: Salt Lake City, UT USA Love, Madeline and Evan Kachocki Tuesday, August 03, 2004 -- 23:31:13 (EDT) Name: Sally Location: Seattle, Sally Tuesday, August 03, 2004 -- 22:26:21 (EDT) Name: Sylvia -- Email: smp75@msn.com Location: Allentown, PA Tuesday, August 03, 2004 -- 19:28:14 (EDT) Name: Katrina Zook -- Email: kzook@uwyo.edu Location: Laramie, WY You and Simon are constantly in my thoughts. I will continue to pray for Simon's comfort, your strength, and peaceful transitions. Much love, Katrina Tuesday, August 03, 2004 -- 18:59:34 (EDT) Name: a,s,r Location: oakland, ca rowan, steve and annette Tuesday, August 03, 2004 -- 17:46:27 (EDT) Name: Ginny Taylor -- Email: vnt1213@aol.com Location: Olympia, WA Tuesday, August 03, 2004 -- 16:44:13 (EDT) Name: Rebecca Location: Oberlin, We are thinking of you all the time. We send our love and hugs. peace, Rebecca, Randy, Emma and Schuyler Tuesday, August 03, 2004 -- 13:21:59 (EDT) Name: Helen (Aunt to Ryan with NB) -- Email: hbrown@allseasonscommunications.com Location: Washington, Michigan USA Tuesday, August 03, 2004 -- 12:34:34 (EDT) Name: The Connolly Family (another NB Family) -- Email: padwik@yahoo.com Location: Fenton, Michigan USA You are in our thoughts and prayers during this difficult time. Tuesday, August 03, 2004 -- 12:24:18 (EDT) Name: Joann -- Email: jvalenti@russellnewman.com Location: housatonic, massachusettes usa I have been following your story for some time now and I just wanted to say how very sorry I am for the pain you are going thru and to let you know you are in my thougts and prayers everyday. all my love joann Tuesday, August 03, 2004 -- 12:10:26 (EDT) Name: Dannille Smith -- Email: dfitsmith@msn.com Location: Ann Arbor, MI USA We will be holding an Alex's Lemonade Stand in Simon's honor on either the 14th or 21st of August in conjunction with our garage sale (we hope to get lots of traffic!). If any Ann Arborites are interested in helping/participating with us so we can make it BIGGER (the Lemonade stand, that is...), please contact me. We will let you know how it goes. Peace and love to dear, sweet Simon and all of you. Dannille Smith Tuesday, August 03, 2004 -- 11:26:19 (EDT) Name: Julia, Christoph, Serena and Alma -- Email: j.schwartz@stafag.ch Location: Frauenfeld, Switzerland Tuesday, August 03, 2004 -- 10:57:24 (EDT) Name: Jack Winter -- Email: Jackw857@cs.com Location: Salt Lake City, Ut Tuesday, August 03, 2004 -- 02:40:10 (EDT) Name: Nicole Bishop -- Email: anbishop@sisna.com Location: SLC, UT Love, Nicole Tuesday, August 03, 2004 -- 00:11:20 (EDT) Name: Mary Craig -- Email: mfcraig@umich.edu Location: Salt Lake City, UT USA Still hanging on. Settling down to sleep. Loving our time together. Hoping Simon stays comfortable. Love, Mary Monday, August 02, 2004 -- 23:57:40 (EDT) Name: Rachael Coleman from SLC -- Email: geminimoon@csolutions.net Location: Santa Rosa, CA I flew to California this morning. I'm staying in Santa Rosa with my girlfriend, her daughter, and new granddaughter. I haven't had sweet baby energy around me in so long. What a perfect vacation for me. On Saturday we will pick up Maggie from Camp Winnarainbow. This year she's learning to walk on stilts. She qualified to move from shorty stilts to tall stilts in just one day. They put on a big performance on the last day. All the kids show off the talents they've perfected over their two weeks at camp. Sorry to hear about (((Alex))). May the four winds blow her safely home. My thoughts and prayers are with her family too. Thank you for letting us know, Mary. Monday, August 02, 2004 -- 23:55:15 (EDT) Name: Kerianne Tupac -- Email: kmtupac@umich.edu Location: Ann Arbor, MI USA I thought about you and your family all week during my trip. My prayers along with my family's have been with you, Miriam, Mary, Markus, and Grann. A long time ago when I was in college, we sang this song. Your incredible strength is truely a sign that you are stilling singing to us. Yearnings by John Carter Oh for a day to walk again, slow through a forest deep. Oh for the time to talk again, before I go to sleep. Oh for the warmth of summer sun, the chill of winter’s eve And oh for a chance to sing my song, once more before I leave. Oh for the scent of autumn air brisk and clean and cold Oh the time to travel where the seas are blue and bold Oh for the prayer I never prayed, the kiss I never kissed And oh for a chance to sing my song, once more, while yet I’m missed. Cry of bird and wail of wind, Word unspoken, sin un-sinned, A night to dance, a hill to climb, The chance to sing while there is time. Oh for the taste of meat and ale to linger on my tongue. Oh for the sight of hill and dale, and faces that are young. Oh for the hand of one I love, the time to bloom and grow; And oh for the chance to sing my song, once more, before I go. God Bless. Kerianne and Bryan Monday, August 02, 2004 -- 23:29:22 (EDT) Name: Debbie Hume -- Email: hume@thegrid.net Location: San Luis Obispo, CA USA Monday, August 02, 2004 -- 23:01:09 (EDT) Name: jesse reed -- Email: treed@simplysisters.us Location: Salt lake, Utah Love, Jesse Monday, August 02, 2004 -- 22:38:57 (EDT) Name: Gari Stein Location: Ann Arbor, MI Monday, August 02, 2004 -- 18:08:28 (EDT) Name: Ethan -- Email: steinbiz@yahoo.com Location: New York, NY USA Greetings from hot and muggy New York City. We send you love and peace or, as Rona would say, "ahava" and "shalom". - Ethan Monday, August 02, 2004 -- 15:41:32 (EDT) Name: Jane Bishop -- Email: jebish@umich.edu Location: Ann Arbor, MI "Be like the bird who in his flight, pauses on branch too slight, yet SINGS, knowing that he hath WINGS" Mary and family, you can all take comfort in the knowledge that Simon will use his wings of love which you gave him, and keep on singing! All my love, Jane Monday, August 02, 2004 -- 14:34:01 (EDT) Name: Kelly Robinson -- Email: tkranch@rconnect.com Location: Franklin, Mn We have been following Simon's journey for some time now, and especially the past few weeks. You are all doing such a Great job of taking care of this little guy, and keeping us updated on everything! You are in our thoughts constantly, and we are Praying for peace, comfort, and ease as Simon leaves us for his next place. Give Simon a sweet kiss from me Mary, and know that you are all deeply in our hearts. With Love & Peace Kelly & Tom Robinson Bryan, Sydney Sam & Carl Monday, August 02, 2004 -- 13:53:58 (EDT) Name: Marty Hiat -- Email: martyg@gwi.net Location: Topsham, Maine USA Monday, August 02, 2004 -- 12:40:52 (EDT) Name: Keri Anderson -- Email: Keria23@hotmail.com Location: SLC, UT Monday, August 02, 2004 -- 10:40:18 (EDT) Name: Christie Brown -- Email: clbrown@umich.edu Location: Ann Arbor, MI Yesteday and today have been beautiful, beautiful days in Ann Arbor: sunny, cloudless, and just a little bit too warm--just too warm enough that you feel that Someone is trying to get your attention, but not so warm that you are unhappy about it. Just warm enough to feel energetic and hopeful. As I drove along I felt that the sun was Simon's own energy and hope dispersing into the Universe, like he was putting it up there for us to use, because maybe he isn't going to use it himself for much longer. So that on every sunny day forever we will look up at the sky and say "Hi Simon thanks for the smile." Peace from sunny Ann Arbor. Monday, August 02, 2004 -- 09:32:52 (EDT) Name: Gretchen Spreitzer -- Email: spreitze@umich.edu Location: Ann Arbor, Mi USA You are an inspiration to me. You remind me to hug my girls tighter every day, to savor the little things in life like the sound of a heart beating and a little voice speaking. Thanks for having the courage to share your incredible journey with us every step of the way! Monday, August 02, 2004 -- 08:59:59 (EDT) Name: Kris Hopkins -- Email: khopkins@mail.colgate.edu Location: Clinton, NY I also wanted you to know what Laura suggested the other day when I told her Simon's journey with cancer was coming to an end: "You know my friend Paul, who died in Kindergarten? Well he could maybe meet Simon in Heaven and show him around and stuff. Maybe they'll even get to be good friends!" May Simon have as many (and more) friends in Heaven as he's cultivated here on Earth. And may those of us who are left behind find comfort in that thought.... Our prayers continue to be with you. You guys are amazing and such an inspiration for all of us. Love, Kris, Rob, Emily, Danny, and Laura Monday, August 02, 2004 -- 07:57:54 (EDT) Name: Tina -- Email: tdacin@business.queensu.ca Location: Kingston, Ontario Canada Monday, August 02, 2004 -- 06:31:28 (EDT) Name: Heather -- Email: heather@bullockwoodburn.demon.co.uk Location: Buxton, England We have laughed and cried with you all over the last few months and you can be sure we will still be here sending you our love and support in the days to come. Our hearts are bursting with sadness but also with amazement- you wonderful people! all our love, Heather, Tim, Amie and Susie Monday, August 02, 2004 -- 04:11:22 (EDT) Name: Iris taylor -- Email: iris_taylor@health.qld.gov.au Location: Brisbane, Queensland Australia Sunday, August 01, 2004 -- 22:19:06 (EDT) Name: Sylvia -- Email: smp75@msn.com Location: Allentown, PA They are there Simon, ones who have gone before you. They will greet you and show you around. Don't be afraid sweetheart. I'm praying for you on your journey. God Bless. xxxooo Sunday, August 01, 2004 -- 20:28:18 (EDT) Name: Ashley and Keri Anderson -- Email: keria23@hotmail.com Location: SLC, UT Sunday, August 01, 2004 -- 17:12:41 (EDT) Name: Lynda Newman -- Email: lynewman@msn.com Location: Gainesville, Florida USA Sunday, August 01, 2004 -- 16:46:21 (EDT) Name: Joan and Cameron Borton -- Email: cjborton@prodigy.net Location: Portland, Maine USA Madi and Lexi's Nana and Papa Sunday, August 01, 2004 -- 16:45:16 (EDT) Name: Joan and Cameron Borton -- Email: cjborton@prodigy.net Location: Portland, Maine USA Madi and Lexi's Nana and Papa Sunday, August 01, 2004 -- 15:39:12 (EDT) Name: Rachael Coleman -- Email: geminimoon@csolutions.net Location: SLC, UT Love and blessings to all who come to this site and all who love Simon and his family. Our prayers, love and support remain with you. Go now in peace and may the spirit of love always surround you. ~Rachael, Maggie and August p.s. Maggie and August said Miriam might know them from Sunday School last year. They were two of the 4th and 5th graders that sometimes helped in her class. Sunday, August 01, 2004 -- 15:02:51 (EDT) Name: Sylvia Pituch -- Email: smp75@msn.com Location: Allentown, PA USA This site is probably one of the most creative that I have seen! Thank you for sharing it with us. Simon, though you may not hear what I am saying to you, I hope your family will know that we will be storming heaven with prayer for you all. It's so difficult and sad to separate from each other, isn't it? But I believe that even though those that we love cannot be with us in the physical sense, that we are all still together, no matter what...carried in our hearts forever. And there are times when you just KNOW that the person we love is in our presence. God speed dear Simon. Have a beautiful journey. Love, Sylvia Sunday, August 01, 2004 -- 14:32:14 (EDT) Name: Elizabeth Kent -- Email: randekent@aol.com Location: Oregon House, CA The love in your family strengthens all of us. Simon's transition is guided by the highest, gentlest, hand. Much gratitude to Simon and love to you all, Elizabeth Sunday, August 01, 2004 -- 12:56:36 (EDT) Name: Antonis Location: Kalamata, Greece Sunday, August 01, 2004 -- 11:18:21 (EDT) Name: Gari Stein Sunday, August 01, 2004 -- 07:54:15 (EDT) Name: Marta, Paul, Sam -- Email: manildi@millercanfield.com Location: Ann Arbor, We have returned from overseas travel and are glad to be able to read this amazing website and to post to you again. Not a day went by in our travel that we did not think of you. We are overwhelmed with sorrow as we anticipate the world's loss of beautiful, sweet Simonm abd with gratitude for the oppotunity to know and love him and to share in an amazing community of your supporters through this site. We are comforted by the certainty that love is the defining experience of Simon's final days, for him and for all of you. You are in our hearts, Marta, Paul and Sam Sunday, August 01, 2004 -- 05:52:36 (EDT) Name: Irene Judmayer Location: Linz, Austria Sunday, August 01, 2004 -- 04:41:02 (EDT) Name: Kathryn Bartholomew -- Email: kate@tinypineapple.com Location: , Utah USA "A Gaelic Blessing" has always been one of my favorites. Myriad versions, all of them lovely: Deep peace of the running wave to you. Deep peace of the flowing air to you. Deep peace of the quiet earth to you. Deep peace of the shining stars to you. Deep peace of the gentle night to you. Moon and stars pour their healing light on you. Deep peace of the Light of the World to you. Deep peace of love to you. Deep peace of love, Kate Sunday, August 01, 2004 -- 00:39:28 (EDT) Name: Collen -- Email: ozi_gal@hotmail.com Location: Rockingham, WA Australia MESSAGE BOARD Archive
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