Genetics of Tourette Syndrome
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The Tourette Syndrome Association International Consortium for Genetics (TSAICG) is at the forefront of identifying the genes that increase risk for Tourette Syndrome (TS). But we need your help! We are working together with the National Institutes of Health (NIH) to find the genes involved in the development of TS. We believe that understanding why people have TS will help lead to better diagnosis and improved treatment for those who struggle with tics and related problems.
If you are interested in being in this study, you must be an adult (ages 18 and above) or youth (ages 6 to 17) who has a diagnosis of TS from a doctor.
To begin the study, adults with TS will fill out a questionnaire about their own tics and related symptoms. For youth with TS (ages 6 to 17), a parent will be required to fill out the questionnaire for (or with) their child. The questionnaire can be completed online or over the phone. To start the questionnaire, please visit https://findTSgenes.org. The questionnaire takes about 20 minutes to complete online.
Answers to the questionnaire will be reviewed to see if the person with TS (you or your child) qualifies for the second part of our study - giving a blood sample used for genetic analysis. Only one eligible family member with a TS diagnosis can provide a blood sample. Some participants will also be selected to take part in a longer, optional interview.
To learn more about the study, please go to
https://findTSgenes.org OR call 1-877-883-9350
(1-TS STUDY E 50) (East Coast) or
1-877-883-9950 (1-TS STUDY W 50) (West Coast).
Remember that calling for information does not obligate you to participate in the study.
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Last revised 05-Nov-2010 by Steven Leber