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This is a web-based registry of children who have had or now
have a diagnosis of infantile spasms. It is an effort to collect treatment and
clinical outcome data on a large group of children with infantile spasms. There
is also a genetic research component that seeks to learn more about the genetic
causes and mechanisms of spasms. We are especially interested in children with
Down Syndrome who have spasms, and cases of cryptogenic spasms. The study
is IRB approved and is funded by the NIH NSADA grant.
Contact and further information:
http://infantilespasms.wustl.edu
Go back to Seeking Patients page
Last revised 30-Sep-2009 by Steven Leber